One question I get all of the time from people about the Cancer I had was, WHAT IS THAT?! By just getting the word out there we are opening up the doors to so many that can pass it on to make this cancer not so foreign. I often ask WHY did I get this, but maybe it is to help get the word out and save others who get the Cancer. Want to make a difference. Being 15 months Cancer Free definitely opens up that for me!

CCS is CCS presents as a slow growing mass that especially affects tendons and aponeuroses and it is deeply situated. Patients often perceive it as a lump or hard mass. It causes either pain or tenderness but only until it becomes large enough.

Check out the FaceBook page for further information and details.

http://www.facebook.com/pages/Clear-Cell-Sarcoma/162726640435189